Thalassemia Camp

Today we conducted a camp for our Thalassemia babies and screened them for HIV , Hepatitis B and Hepatitis C virus. In all we screened 25 babies and also did their general health checkups and guided the parents for proper care. We also provided them with the concession forms of railways and roadways so that they can awail this facility. It was only for one unlucy girl child of 7 yrs who tested positive for HIV. In the end we provided medicines to the parents. Thanks to 2 parents who understands the financial problems and donated money for the poor and needy patients. We also had a meeting with them and wrote down their problems they were facing and tried to show them the way out. The next meeting is scheduled on July 10th when all these children would be further screened by a Hemato oncologist from Ahemdabad.

World Thalassemia Day

Our foundation celebrated World Thalassemia day on May 8th 2011. Morning we had a voluntary blood donation camp at Lakecity Hospital , Udaipur where we collected 110 units of Blood for our Thalassemic children. It was really inspirational to see so many young people comming forward and donating blood for this noble cause and off the record it was so heart touching to see someone donating blood giving her wrong age as 59 in place of 61 years just because the donation cant be accepted after 60 yrs of age. Afternoon we had a Picnic with these kids..... nothing much to speak as the pictures speak for themselves.

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WORLD THALASSEMIA DAY

Dear friends ,
The whole world on 8th of May will celebrate " WORLD THALASSEMIA DAY" and our foundation which is working with Thalassemic babies past 2 years will be celebrating it with the kids suffering from this dreadful disese. These kids cannot survive if they are not transfused with blood every 20-25 days and because of so much transfusion their kidneys ,liver and heart gets affected and they ultimately die by the age of 13-14 years unless they are properly taken care of. On this day our foundation is conducting a blood donation camp at Lake city hospital, Fatehpura ,Udaipur from 9 AM to 1 PM with the help of Saral Blood bank and then we are organizing a picnic for these small children by the Courtesy of Lal Bagh ,Sardarpura from 2-6 PM where we would try to make the kids forget their pain and just enjoy.

May I request all of you to help these kids by donating blood for these kids and may be giving them small gifts which they will remember for ever.....


You can contact me on 9828142100 or Mr Hetal on 9829042999


" God has given us beautiful life, kids and family now its our turn to help those who didnt get this ..... please its my request that come forward and help these kids..... just a smile on their face will change ur lives "

Blood Donation Camp

We had our first blood donation camp for our Thalassemic babies and with the kind courtsey of Ford India , Udaipur branch we were able to motivate 35 people to donate blood. Hetal and Pooja were among the frontrunners in motivating the staff and we are sure that in time to come we will be able to collect at least 100 units of blood every month.

Recent Developments in the Project

I am really sorry that I couldn't update in time due to a hectic schedule but past 2 months we had been working hard on the project and finally came up with some good results

1. One of the biggest organization "Thallasemics India" finally accepted us as a part of them and now with their help our foundation can get the latest updates and also will be able to attend all the conferences and seminars both in India and abroad. Medicines and other equipments needed for Thallasemic babies can be acquired from them at subsidized rates.

2. One of the most ultramodern blood bank in Udaipur has now approached us for tie up with them and so fresh blood will available to the kids at subsidized cost and without any replacement.

3. One of the laboratory in udaipur has tied up with us to provide all the tests for Thallassemic babies at 50% cost.

4. In the recent meetings with parents both of our team members Pooja and Kriti discussed with the parents about the food habits in Thallassemic babies and Iron overload respectively and to my utter surprise now the team members are developing so fast that they were able to answer most of the queries of the patients themselves without me and one feels really good when the team is so devoted for the cause.

Parents Doctors meet

As already known we had a parents doctors meet yesterday and had a two hour long session where parents were asked to raise their queries and were answered by Dr Meetu ,Ms Pooja and myself. We had two lectures where I spoke to the Parents about Blood transfusion to their Kids and Pooja spoke to them about the diet pattern for the kids and guided them when and how to give chelation therapy to the kids which was followed by a long discussion. The next meeting with the parents is scheduled on June 13th Sunday.

Meeting for Parents

As we move on to the next step of our project we have invited all the parents of the children suffering from Thalassemia for a get together on May 22nd 2010 where we have called to experts to give them a lecture on the misconcepts of the disease.To my utter surprise the parents have a feeling that their child is going to die and cannot be saved from this disease and so they should emotionally separate out the child from the family. The parents after meeting us have a new ray of hope for their children and we want it to increase more and more as days pass by.........