New Thalassemia committee

On July 12th we organized the first meeting of the newly formed committee at Lal Bagh Hotel where all the members of the team were introduced to each other. I gave a presentation of our foundation to the doctors and showed them on PPP of what we are doing. Mr. Hitesh from Novartis presented to the doctors about their Smile programme. This new committee is headed by Dr Suresh Goyal (HOD – Government hospital- Dept. of Paediatrics) and me as the Secretary. The team includes 4 doctors from Paediatric dept., 3 from Pathology dept. and 4 people from our foundation; we also included 3 families of the sufferers. The main purpose of this committee will be to work together in government set up for taking proper care of the Thalassemic babies. The committee was very much determined to work for the welfare of these young sufferers.
The members decided to meet once every month and discuss the problems faced by the patients and sort them out.
It was also decided that the newly constructed ward will be handed over to the foundation for running it as Thalassemia ward. We discussed a lot of points to start with and it was really good to see that the foundation received permission to put in banners in the ward for the benefit of the patients. It was also decided to plan blood donation camps with the help of Government doctors.

Hemato Oncology Camp

Today we conducted a camp under the banner of our foundation and LakeCity Hospital where Dr Chirag Shah - Renowned Hemato Oncologist from Apollo Hospital - Ahemdabad and his Assistant Dr. Munjal examined 37 patients suffering from various hematological diseases and gave them advice. It was further decided that every month they would visit to Udaipur and give their services to the patients. Hemato Onchological diseases are diseases related to blood which uasually are cancerous and earlier there was no treatment available but thanks to the invented medicines and these specialist doctors by which now more then 90 % of the diseases can be cured and controlled.

Thalassemia Camp

Today we conducted a camp for our Thalassemia babies and screened them for HIV , Hepatitis B and Hepatitis C virus. In all we screened 25 babies and also did their general health checkups and guided the parents for proper care. We also provided them with the concession forms of railways and roadways so that they can awail this facility. It was only for one unlucy girl child of 7 yrs who tested positive for HIV. In the end we provided medicines to the parents. Thanks to 2 parents who understands the financial problems and donated money for the poor and needy patients. We also had a meeting with them and wrote down their problems they were facing and tried to show them the way out. The next meeting is scheduled on July 10th when all these children would be further screened by a Hemato oncologist from Ahemdabad.

World Thalassemia Day

Our foundation celebrated World Thalassemia day on May 8th 2011. Morning we had a voluntary blood donation camp at Lakecity Hospital , Udaipur where we collected 110 units of Blood for our Thalassemic children. It was really inspirational to see so many young people comming forward and donating blood for this noble cause and off the record it was so heart touching to see someone donating blood giving her wrong age as 59 in place of 61 years just because the donation cant be accepted after 60 yrs of age. Afternoon we had a Picnic with these kids..... nothing much to speak as the pictures speak for themselves.

n

WORLD THALASSEMIA DAY

Dear friends ,
The whole world on 8th of May will celebrate " WORLD THALASSEMIA DAY" and our foundation which is working with Thalassemic babies past 2 years will be celebrating it with the kids suffering from this dreadful disese. These kids cannot survive if they are not transfused with blood every 20-25 days and because of so much transfusion their kidneys ,liver and heart gets affected and they ultimately die by the age of 13-14 years unless they are properly taken care of. On this day our foundation is conducting a blood donation camp at Lake city hospital, Fatehpura ,Udaipur from 9 AM to 1 PM with the help of Saral Blood bank and then we are organizing a picnic for these small children by the Courtesy of Lal Bagh ,Sardarpura from 2-6 PM where we would try to make the kids forget their pain and just enjoy.

May I request all of you to help these kids by donating blood for these kids and may be giving them small gifts which they will remember for ever.....


You can contact me on 9828142100 or Mr Hetal on 9829042999


" God has given us beautiful life, kids and family now its our turn to help those who didnt get this ..... please its my request that come forward and help these kids..... just a smile on their face will change ur lives "

Blood Donation Camp

We had our first blood donation camp for our Thalassemic babies and with the kind courtsey of Ford India , Udaipur branch we were able to motivate 35 people to donate blood. Hetal and Pooja were among the frontrunners in motivating the staff and we are sure that in time to come we will be able to collect at least 100 units of blood every month.

Recent Developments in the Project

I am really sorry that I couldn't update in time due to a hectic schedule but past 2 months we had been working hard on the project and finally came up with some good results

1. One of the biggest organization "Thallasemics India" finally accepted us as a part of them and now with their help our foundation can get the latest updates and also will be able to attend all the conferences and seminars both in India and abroad. Medicines and other equipments needed for Thallasemic babies can be acquired from them at subsidized rates.

2. One of the most ultramodern blood bank in Udaipur has now approached us for tie up with them and so fresh blood will available to the kids at subsidized cost and without any replacement.

3. One of the laboratory in udaipur has tied up with us to provide all the tests for Thallassemic babies at 50% cost.

4. In the recent meetings with parents both of our team members Pooja and Kriti discussed with the parents about the food habits in Thallassemic babies and Iron overload respectively and to my utter surprise now the team members are developing so fast that they were able to answer most of the queries of the patients themselves without me and one feels really good when the team is so devoted for the cause.